God willing, we will head to San Antonio on Sunday and I'll receive my first dose of LDE225 on Monday morning. That day will be an eleven hour stay at the clinic, as blood work and EKGs will be done all day. We will have to return to the clinic the next four days for more blood work and EKGs. If everything is OK, I will begin taking the drug every day the following Monday.
LDE225 has been given to five patients thus far, four in the US and one in Spain. They were the first ever humans, receiving the minimum dose, and so far they have tolerated it well. In a Phase I trial like this, the primary goal is to determine if the drug can be taken safely by humans and, if so, how much can be tolerated. Because I'm in the second tier, or group, of patients, I'll receive twice the dose that the first group did. As far as we know, I will be able to continue taking the drug for as long as I tolerate it, for as long as I am receiving a benefit from it, and as long as I want to. This drug is not a "chemo" drug, and they do not believe there will be very many detrimental effects from it. I guess we'll soon know.
The next several weeks will be filled with lots of trips and lots of time spent in San Antonio. The timing of it will really be in Helen's favor, as school is over tomorrow for the summer. We enjoy being together and are incredibly blessed to have such a great home away from home with her sister and brother-in-law. We are thankful for God's sustaining power and never-failing provision in our lives.
We love all of you,
Kenny and Helen
6 comments:
Thinking about you all. Plead the Blood of Jesus over you. Love you!
toni hernandez
We are glad things are lining out so you can start getting the new treatment.
Sure do appreciate your blog to keep us informed.
We love you and continue to pray.
Lloyd & Virginia
hey guys, i realize u probably won't read any of this today, but i wanted u to encourage u guys. i am praying for everything that happens this week. i am praying for everyone that is involved in your treatment. so many people are lifting u up today. just know how much God loves u and we love u. debi and carl
oh, we got about an inch of rain last night, 1/2 inch before midnight and 1/2 inch as we slept. thank u LORD!
debi
still thinking about u. debi
hey guys, it's 8 o clock, and i figure u are just getting home, or hopefully. just wanted u to know i've been thinking of u all day and praying. i figure today's been pretty hard. i pray that it wasn't too much. love u both, debi
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