Tuesday, June 23, 2009

News from the treatment trail...


We are back from another trip to the River City...today is my 16th day on LDE225, and still so far the worst side effect that I am aware of is headaches.  Their frequency has decreased, but a couple of them have been a little more harsh.  Nothing I can't live with, however.  I will have another PET scan sometime in the next couple of weeks, either on the 29th or July 6; my next CT scan (with which they can measure tumor sizes) is set for sometime around the last of July.  Between now and Aug 3, we are scheduled to be there every week.  All this, of course, the Lord willing.

We were excited to have Shan and Stef with us on this trip.  One of the hard places of having treatment so far away is that it is more difficult for family (and friends) to feel as connected as they would like.  I know the girls would like to be able to physically be there more, so it was especially nice for them to go.  We were blessed to have a great time with them, and we enjoyed showing them off to everyone.

We spent some time away from the clinic on Monday with two of my fellow sarcoma patients and their spouses.  We enjoyed lunch and supper with them, and we guys got whipped by the ladies in Trivial Pursuit.  I thought I had a pretty good repository of useless knowledge and meaningless facts, but, boy, was I humbled.  We had a great time with them.  It was nice to be around them outside of a medical setting.

It was a real surprise to meet perhaps my most far-removed blog follower last Wednesday night at church, a fellow-believer from New Zealand.  I'm not kidding!!!  Yes, New Zealand, the country!  She has been praying for us for months now, and she came to Big Spring to visit a mutual acquaintance.  It was a real genuine uplifting blessing from God.  Hey, Jeanette!  How exciting to meet you!  God bless you!

We have missed quite a bit of church lately, so it was so good to see so many of you this past Sunday and Wednesday.  We are so fortunate to have so many who care so much about us.  We love all of you and so appreciate your love and prayers.

Happy 50th birthday, Debi!  Inconceivable!  You are such a blessing to us.  We love you!

Kenny and Helen

2 comments:

Tracy said...

I was in San Antonio this past week and thought about you guys a lot. Thanks so much for the updates! I will continue to pray for you.

Anonymous said...

It was good to see you at church this morning.

I'm glad that your trip to San Antonio will be a short one this time.

We will be looking forward to seeing you when you get back.

We love you and are praying for you.

Lloyd & Virginia