There were some interesting developments the week after Christmas. I had no episodes of muscle cramps anywhere in my body for six days in a seven-day period. Since September I have had cramps virtually every day--some days pretty severe, some days relatively mild. So this was quite a welcome surprise. Even more surprising was that for three of those days I began to taste food. I didn't want to get too excited yet, but I wanted some steak! Quickly, before it went away! Helen heard my plea and granted my wish. It made me wonder if perhaps I had been given a placebo for two weeks, but we concluded it was more likely the result of either the Tamiflu I had taken for five days or the Augmentin I was on after that. Anyway, my sense of taste went away and the cramps came back, but less frequently. Since then, there have been a couple of days when I could kinda taste food. I'll take what I can get of that.
There really was very little to report about our last visit, day 15 of cycle 8. My blood work was pretty much the same as usual, mostly within desired ranges. However, my medical team was quite interested to hear about the cramps and taste developments. They deduced that it may have happened because one of the drugs might have interfered with the cancer drug, LDE225. Although it was all speculation at the time, it sure will give the doctors and drug company something to investigate. Anyway, before we got away, they gave me a prescription for a cheap drug that they hoped would help with the cramps. I think it may be helping some.
Our next appointment will be on Tuesday, not Monday, as CTRC will be operating with only a skeleton crew on MLK Day. We will be leaving on Monday, not Sunday, so we are looking forward to staying for worship. I will be having CT scans this time, so we ask for your continued prayers.
By the way, happy new year to all of you!
We love you all!
4 comments:
It was very interesting reading about the recent developments you have experienced.I bet you enjoyed that steak! Was it chicken fried?
Our summer contunues the same way your winter does. I'll enjoy it while I can because our winter will be upon us sooner than we want.
We continue to pray for you both.
Love, Jeanette
you Helen and your family are in our prayers--sorry about the cramps not much rest with that
kenny, helen, stef and shan,
just wanted you to know that i love all of you and i pray for all of you. on this latest development, God has still got everything under control. He has brought you so far and He is definitely not finished. that is truly what i believe. i pray for peace and assurance and grace for you guys. please know that i will always be here for you. love you much, debi
We love you both and continue to pray for you.
Lloyd & Virginia
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