Muscles spasms and cramps surfaced with a vengence on Tuesday evening. I had them all through that night and all day on Wednesday. They were in my hands, arms, legs, feet, chest, shoulder, and chin and were almost continuous. By 4:30 on Wednesday, I decided to call my research nurse to let her know what was going on. She talked to Dr. Mita, who advised us to go to the ER if they got any worse or if I just couldn't take it any more. They would get an appointment set up on Thursday so they could look over my blood work and look me over.
Today we went in at 10:30 to have blood drawn. We did see Dr. Mita, not our Dr. Monica Mita, but her husband, Dr. Alain Mita. (They went to college and med school together and now work together at CTRC.) They concluded that the muscle issue is related to the LDE225 drug, and we decided that I would discontinue the drug until next Thursday. He thought that the time away from it might allow us to reset and begin taking LDE225 at a lower dose, working up to where I have been. We are scheduled for two appointments next Thursday, one in the morning, the other in the afternoon.
My wounds seem to be healing nicely; my breathing is getting a little better every day. We hope to be able to return home either tomorrow or Saturday. Hope to see many of you soon. God is Good! All the time!
Love to all of you!
For a great article about the husband-wife team, go to: www.uthscsa.edu/mission/article.asp?id=545
5 comments:
I was so sorry to read of your muscle spasms and pray that you will soon get relief from that.
I just want to assure you of my love and prayers.
I hope you can get home soon, it is so much nicer to be in your own home.
love, Jeanette and Hector
i pray each day is getting a little easier for u. i take so much for granted. (i have gotten a little bitty cramp in my right hand from playing the new mario game and there ain't nothing good about even a little one.) just wanted u both to know how much we love u and are praying for u. debi
♥Kenny, cramps all over your body has to be terrible!!! I hope leaving off the medication will help those to go away quickly.
I'm glad to hear that you are breathing easier and the wounds are healing.
Just wanted to remind you that we think of you and pray for you often.
Virginia & Lloyd♥
Kenny and Helen,
It is so good to log on here and read about all that is going on. I am thankful that you are healing from the surgery. I am sorry to hear about the cramps. That must be excruciating. I can't stand a small one in my foot, I don't think I could handle them all over...and in your chin?
Please know that you are both in my thoughts and prayers.
Tracy
kenny and helen, i just wanted to remind you that i am praying for you. i can imagine how easy it would be to get discouraged, so i pray for peace and assurance. love u both very much, debi
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