I am back on the experimental drug LDE225 for at least the next eight weeks. I began taking it again yesterday. We will be on the same schedule we have been on for most of the past year--every other Monday we will have an appointment in San Antonio. I will have CT scans again in eight weeks, after which we will talk with Dr. Mita about what we will do next.
It was nice being off of the drug for four weeks. Although taking it has been painless, getting a break from the weird breakfast protocol has been good. I have been able to have morning coffee and regular breakfast. A lot of you have asked about how my taste issue is, having been off of the drug for a while. I am now able to tell the difference between Life Saver flavors, which was impossible a couple of months ago. And for the first time since November, I can now taste salt on my tongue! A breakthrough! We really were not sure whether or not my taste would ever get back to normal, but it appears that if I am ever able to completely get off of this drug, it may happen. We are excited about that!
A special word of thanks to Allen, Tim, and Vern for teaching our Sunday School class for the past three weeks. Thanks for your willing spirit and making yourselves available to the Lord!
Love you all,
Kenny
1 comment:
I've always heard "better late than never", so I am responding to your week and a half old blog. :-)
So glad things are going well for you.
Just a reminder - We love you and are praying for you.
Virginia & LLoyd
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