Change of Plans

Our plans have changed for the next few days...after much prayer and seeking, we have told Dr. Mita that we have decided to try one of the clinical trials she had discussed with us.  We feel a peace that this is the next step we should take.  Our Monday appointment with her has been cancelled, as it is no longer necessary.  We don't know when the next appointment will be.  We should find out more next week, as well as find out more details about a possible schedule.  As with all clinical trials, there will be required eligibility testing that will need to be done prior to beginning treatments.

This is a Phase I trial, meaning that participants in this trial will be the first humans to ever receive this experimental drug, called LDE225.  It is a pill that is taken once daily.  In the first month of treatment, we would have to spend a lot of time at CTRC.  The months following would require fewer visits.  While it is not certain what all of the side effects would be likely, they do have a fairly good idea based on laboratory experiments with animals.   

We are planning to see Helen's sister, Diane, in the next few days.  She is at Scott & White in Temple with a perforated colon.  Please remember her in your prayers.

Thanks to everyone for just being there.  God is Good!

Love, 

Kenny and Helen