Monday, June 1, 2009

LDE225 Day 1

We are back at the house after a long day at CTRC.  Although we were there for almost 12 hours, it wasn't really bad.  We were blessed by seeing several friends there that we hadn't seen in months.  It is always such a relief to see fellow patients who are still surviving and thriving despite the difficulties they have been through.

After beginning the morning with the typical vitals, blood sampling and other samples, I broke my fast with a meal of toast, jelly and juice -- a trio I am going to have to get used to if I stay on this drug.  The rest of the day was filled with periodic blood draws, EKGs and vitals.  We are encouraged that thus far I have not experienced any nausea, something that is a definite possibility with the drug.  I have to say it was a little weird taking a drug that only a handful of humans have ever taken.  But it didn't seem to make me feel any differently, so we feel good about that.  We'll see what happens with my blood work.  So far, so good.

Our time at the clinic the next four days should be much shorter.  I will not take the drug again this week.  However, we will go in every day through Friday for more blood work, EKGs and check-ups.  If all goes well, I should begin taking the drug daily on Monday.  We will stay here through then.

God has not only led us to where we have been and where we are, but He has carried us there.  We continue to rest on His promises and trust in His provision and His good purpose for our lives.

Blessings and love,

Kenny and Helen

9 comments:

beddie said...

hey kenny, i'm really glad to hear how your day went. i've been really thinking about u alot today. if u check your last post, i left 4 or 5 comments, knowing that u wouldn't see them yet. anyway, i have also wanted to call, but u need all the rest u can get. i just am satisfied to know that u are ok thus far. that's wonderful, so far no side effects. thank u, God. i pray that u continue to be able to let God carry u both. love u, kenny. love u, helen. u know i am praying for u. love u lots, debi

debi said...

i'm going to call mom and dad and read this post to her, or walk her through it over the phone. they went to jacob's play off game, probably not home yet. she was anxious to hear, also and told me to tell u how much they loved u too.
debi

stefani_scott said...

LOVE you guys soooooo much!

And dont worry I will remember to water your plants :) and put the bananas in the refrigerator.

P.S. I would totally marry coffee if I could.

mmmmmmuuuhhhh kiss kiss!

Anonymous said...

Hi Kenny & Helen,

I am so glad that things went well for you today. It does sound like a long, hard day and I know you are tired. Sounds good that the other days should be shorter and easier.

As you know, we love you both and are praying for you.

Lloyd & Virginia

Anonymous said...

So glad to hear from you and know that your day went well.

Continuing to pray that God will hold you very close as you walk with Him through another adventure.

Love you,
Lou and Les

debi said...

praying for u guys today that everything is still ok, and i pray that u are feeling well. love u both, debi

debi said...

hope u are still feeling well. just letting u know i'm thinking of u both. debi

Bro-n-law said...

Henny and Kelen,
Just wanted to let you both know that you are always in my prayers. There is no better place to be than in the arms of our Lord, and we cannot do better than to let ourselves be carried by Him.
Gove you luys and will lalk to you tater.

Carl

Anonymous said...

There is a lady named Debi (is really Debora) this doesn't know how to spell u. It is YOU.
(Elizabeth). I am praying for you.
I am glad you get to keep this journal. It is easier to keep up with what's going on.
I love you both very much.
David 10/18/52